当前位置: X-MOL 学术BMC Pregnancy Childbirth › 论文详情
Our official English website, www.x-mol.net, welcomes your feedback! (Note: you will need to create a separate account there.)
Research priorities of women at risk for preterm birth: findings and a call to action.
BMC Pregnancy and Childbirth ( IF 3.1 ) Pub Date : 2020-01-13 , DOI: 10.1186/s12884-019-2664-1
Linda S Franck 1, 2 , Monica R McLemore 1 , Shanell Williams 1 , Kathryn Millar 1 , Anastasia Y Gordon 3 , Schyneida Williams 4 , Nakia Woods 5 , Lisa Edwards 6 , Tania Pacheco 7 , Artie Padilla 8 , Fanta Nelson 9 , Larry Rand 1
Affiliation  

BACKGROUND Traditional hierarchical approaches to research give privilege to small groups with decision-making power, without direct input from those with lived experience of illness who bear the burden of disease. A Research Justice framework values the expertise of patients and communities as well as their power in creating knowledge and in decisions about what research is conducted. Preterm birth has persisted at epidemic levels in the United States for decades and disproportionately affects women of color, especially Black women. Women of color have not been included in setting the agenda regarding preterm birth research. METHODS We used the Research Priorities of Affected Communities protocol to elicit and prioritize potential research questions and topics directly from women of color living in three communities that experience disproportionately high rates of preterm birth. Women participated in two focus group sessions, first describing their healthcare experiences and generating lists of uncertainties about their health and/or healthcare during pregnancy. Women then participated in consensus activities to achieve 'top-priority' research questions and topic lists. The priority research questions and topics produced by each group were examined within and across the three regions for similarities and differences. RESULTS Fifty-four women participated in seven groups (14 sessions) and generated 375 researchable questions, clustered within 22 topics and four overarching themes: Maternal Health and Care Before, During, and After Pregnancy; Newborn Health and Care of the Preterm Baby; Understanding Stress and Interventions to Prevent or Reduce Stress; and Interpersonal and Structural Health Inequities. The questions and topics represent a wide range of research domains, from basic science, translational, clinical, health and social care delivery to policy and economic research. There were many similarities and some unique differences in the questions, topics and priorities across the regions. CONCLUSIONS These findings can be used to design and fund research addressing unanswered questions that matter most to women at high risk for preterm birth. Investigators and funders are strongly encouraged to incorporate women at the front lines of the preterm birth epidemic in research design and funding decisions, and more broadly, to advance methods to deepen healthcare research partnerships with affected communities.

中文翻译:

有早产风险的妇女的研究重点:发现和行动呼吁。

背景技术传统的分层研究方法赋予具有决策权的小团体特权,而无需那些具有疾病负担经验的人的直接投入。“研究正义”框架重视患者和社区的专业知识,以及他们在创建知识以及进行何种研究的决策方面的能力。在美国,早产在流行病水平上已经持续了数十年,并且对有色女性尤其是黑人女性的影响尤其严重。有色女性没有被纳入有关早产研究的议程。方法我们使用“受影响社区的研究优先级”协议直接从居住在三个经历过高比例早产的三个社区的有色女性中直接引出并确定潜在的研究问题和主题。妇女参加了两次焦点小组会议,首先是描述她们的医疗保健经历,并生成有关她们在怀孕期间的健康和/或医疗保健状况的不确定性清单。然后,妇女参加共识活动,以实现“最优先”的研究问题和主题列表。每个小组提出的优先研究问题和主题均在三个区域内和跨三个区域进行了研究,以研究它们的异同。结果54名妇女参加了7个小组(共14节),并提出了375个可研究的问题,集中在22个主题和四个总体主题中:孕前,孕中和孕后的孕产妇保健和护理;早产儿的新生儿保健和护理;了解压力和干预措施以预防或减轻压力;人际关系和结构性健康不平等。这些问题和主题代表了广泛的研究领域,从基础科学,翻译,临床,卫生和社会保健交付到政策和经济研究。区域之间在问题,主题和优先事项上有许多相似之处和一些独特之处。结论这些发现可用于设计和资助针对尚未解决的问题的研究,这些问题对于早产高危女性最重要。
更新日期:2020-01-13
down
wechat
bug