BACKGROUND As palliative care increasingly takes place in patients' homes, perceptions of security among patients in the late palliative phase and their relatives are important. AIM To describe and compare patient-relative dyads regarding their perceptions of security in palliative homecare, including the perceived security of the actual care given to the patients, as well as the subjective importance of that care. METHODS A cross sectional questionnaire study including 32 patient-relative dyads was conducted in an urban municipality in Norway. Patients were in a late palliative phase and received palliative homecare. Each patient proposed one relative. Data were collected using a modified version of the Quality from the Patients' Perspective instrument (QPP), which focuses on security and comprises three dimensions: medical-technical competence, identity-orientation approach and physical-technical conditions. Context-specific scales containing four aspects (competence, continuity, coordination/cooperation, availability) were added. The instrument contains two response scales; perceived reality (PR) and subjective importance (SI). Data were analysed by descriptive statistics, Chi-squared test, T-test and Wilcoxon's signed rank test. RESULTS Patients had high mean scores on the PR-scale for the sense of security in palliative homecare in the dimensions of medical-technical competence and physical-technical conditions. There were three low mean scores on the PR-scale: the aspect of continuity from patients and the aspects of continuity and coordination/cooperation from relatives. The patients scored the SI scale statistically significantly higher than the PR scale in the identity-orientation approach dimension and in the aspect of continuity, while relatives did so in all dimensions and aspects. The intra-dyadic patient-relative comparisons show statistically significant lower scores from relatives on the PR-scale in the dimensions of medical-technical competence, physical-technical conditions, identity-orientation approach and the aspect coordination/cooperation. CONCLUSIONS There are several statistically significant differences between patients and relatives' perceptions of security in the palliative homecare received (PR) compared with the subjective importance of the care (SI) and statistically significant differences in the patient-relative dyads in PR. A relatively mutual sense of security in palliative homecare is important for patient-relative dyads, as relatives often provide care and act as patients' spokespersons. What they assess as important can guide the development of palliative homecare.

中文翻译：

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挪威市政当局对姑息性家庭护理的安全感；对患者和亲戚看法的二元比较-定量研究。

背景技术随着姑息治疗越来越多地出现在患者家中，对姑息晚期患者及其亲属的安全感的认识很重要。目的描述和比较患者相对二联体在姑息家庭护理中对安全性的看法，包括对患者实际护理的感知安全性以及该护理的主观重要性。方法在挪威的一个城市中进行了一项横断面调查表研究，包括32个患者相对二元组。患者处于姑息晚期，接受姑息家庭护理。每个病人都推荐一个亲戚。使用“患者视角”工具（QPP）的“质量”修改版收集数据，该工具侧重于安全性，包括三个方面：医疗技术能力，身份导向方法和物理技术条件。添加了包含四个方面（能力，连续性，协调/合作，可用性）的特定于上下文的量表。该仪器包含两个响应量表；感知现实（PR）和主观重要性（SI）。数据通过描述性统计，卡方检验，T检验和Wilcoxon的带秩检验进行分析。结果患者在姑息家庭护理中在医疗技术能力和身体技术状况方面的安全感在PR量表上平均得分高。PR量表的平均得分较低，为三个：患者的连续性方面和亲戚的连续性与协调/合作方面。在身份取向方法维度和连续性方面，患者对SI评分的得分在统计学上显着高于PR评分，而亲属在所有维度和方面的得分均高于PR评分。在医学技术能力，物理技术条件，身份取向方法和方面协调/合作等方面，二元内部患者相对比较在PR量表上显示出相对亲戚在统计学上较低的分数。结论与姑息治疗的主观重要性（SI）相比，患者和亲戚对姑息性家庭护理（PR）的安全感在统计学上有显着差异，而在PR中患者相对的二倍体在统计学上也有显着差异。姑息家庭护理中相对相互的安全感对于患者相对应的双子座非常重要，因为亲戚通常会提供护理并充当患者的代言人。他们认为重要的事情可以指导姑息性家庭护理的发展。