BACKGROUND Active Rehabilitation (AR) is a community peer-based concept for people with spinal cord injury (SCI) that is primarily delivered through brief residential training programmes. Despite a plethora of positive anecdotal evidence of AR programmes as life-changing experiences, the effects of AR-programmes have not been evaluated scientifically. Here, we present the protocol of the INTERnational Project for the Evaluation of "activE Rehabilitation" (inter-PEER) aiming to evaluate the effects of AR training programmes on community-dwelling individuals with SCI. METHODS International prospective cohort study that recruits consecutive participants in AR training programmes. Evaluation is conducted through a web-based survey at 3 time-points: at the commencement and completion of the training programme, and 3 months after the end of the training programme. Evaluation also includes a practical wheelchair skills test at the first two time-points. The primary outcome measures are the Spinal Cord Independence Measure Self-report (SCIM-SR), the Queensland Evaluation of Wheelchair Skills test (QEWS), the Wheelchair Skills Test Questionnaire (WST-Q) and the Moorong Self-Efficacy Scale (MSES). The secondary outcome measures are the 11-item Life Satisfaction Questionnaire (LiSat-11), the Utrecht Scale for Evaluation of Rehabilitation-Participation (USER-Participation), the Leisure Time Physical Activity Questionnaire for people with SCI (LTPAQ-SCI) and the 10-item Connor-Davidson Resilience Scale (CD-RISC-10). We piloted the implementation of the protocol in Sweden in 7 participants with diverse SCI and sociodemographic characteristics and collected feedback from participants and peer-mentors about study procedures through interviews, a workshop and field observations. DISCUSSION Inter-PEER is the first initiative to propose a systematic evaluation of the effects of AR training programmes among individuals with SCI. The project is a collaborative work of multiple stakeholders, including researchers, clinicians, peer mentors with SCI, and administrators of organisations providing AR programmes. The inter-PEER uses standardised outcome measures relevant to the AR context, it will facilitate quality evaluations of community peer-based programmes, stimulate international collaborations, and inform the design of randomised controlled trials on the effects of AR training programmes.

中文翻译：

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评估“活动性康复”的国际项目（inter-PEER）-一项针对以社区同龄为基础的脊髓损伤患者培训计划进行前瞻性队列研究的方案。

背景技术主动康复（AR）是针对脊髓损伤（SCI）患者的基于社区同龄人的概念，主要是通过简短的住院培训计划提供的。尽管有很多正面的轶事证据表明AR计划可以改变生活，但是AR计划的效果尚未得到科学评估。在这里，我们介绍了“ activE康复”评估国际项目（inter-PEER）的协议，旨在评估AR培训计划对SCI社区居民的影响。方法国际前瞻性队列研究招募了AR培训计划的连续参与者。在三个时间点通过网络调查进行评估：在培训计划开始和完成时，培训计划结束后三个月。评估还包括在前两个时间点进行的实用轮椅技能测试。主要结果指标是脊髓独立性指标自我报告（SCIM-SR），昆士兰州轮椅技能测验评估（QEWS），轮椅技能测验问卷（WST-Q）和Moorong自我效能感量表（MSES） 。次要结果指标是11项生活满意度调查表（LiSat-11），乌得勒支康复参与度评估量表（用户参与度），SCI患者的休闲时间体育活动量表（LTPAQ-SCI）和十项Connor-Davidson复原力量表（CD-RISC-10）。我们在瑞典的7名具有不同SCI和社会人口统计学特征的参与者中试行了该协议的实施，并通过访谈，研讨会和实地观察收集了参与者和同行指导者关于研究程序的反馈。讨论Inter-PEER是提出对SCI个体中AR培训计划的效果进行系统评估的第一个倡议。该项目是多个利益相关者的协作工作，包括研究人员，临床医生，SCI的同行指导者以及提供AR计划的组织的管理人员。跨学科PEER使用与AR环境相关的标准化结果度量，它将促进对基于社区同龄人的计划的质量评估，促进国际合作，