PURPOSE We examined the association between sociodemographic, personal, and disease-related determinants and referral to a new model of health care that uses patient-reported outcomes (PRO) measures for remote outpatient follow-up (PRO-based follow-up). METHODS We conducted a prospective cohort study among outpatients with epilepsy at the Department of Neurology at Aarhus University Hospital, Denmark. Included were all persons aged ≥ 15 years visiting the department for the first time during the period from May 2016 to May 2018. Patients received a questionnaire containing questions about health literacy, self-efficacy, patient activation, well-being, and general health. We also collected data regarding sociodemographic status, labour market affiliation, and co-morbidity from nationwide registers. Associations were analysed as time-to-event using the pseudo-value approach. Missing data were handled using multiple imputations. RESULTS A total of 802 eligible patients were included in the register-based analyses and 411 patients (51%) responded to the questionnaire. The results based on data from registers indicated that patients were less likely to be referred to PRO-based follow-up if they lived alone, had low education or household income, received temporary or permanent social benefits, or if they had a psychiatric diagnosis. The results based on data from the questionnaire indicated that patients were less likely to be referred to PRO-based follow-up if they reported low levels of health literacy, self-efficacy, patient activation, well-being, or general health. CONCLUSION Both self-reported and register-based analyses indicated that socioeconomically advantaged patients were referred more often to PRO-based follow-up than socioeconomically disadvantaged patients.

中文翻译：

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社会人口统计学，个人和与疾病有关的决定因素转诊至患者报告的基于结果的远程门诊随访：一项前瞻性队列研究。

目的我们研究了社会人口统计学的，个人的和与疾病相关的决定因素之间的关联，以及将其转介到新的医疗保健模型的方法，该模型使用患者报告的结局（PRO）措施进行远程门诊随访（基于PRO的随访）。方法我们在丹麦奥尔胡斯大学医院神经科的癫痫门诊患者中进行了一项前瞻性队列研究。包括所有在2016年5月至2018年5月期间首次访问该部门的年龄≥15岁的人。患者收到了一份问卷，其中包含有关健康素养，自我效能感，患者活动能力，幸福感和一般健康状况的问题。我们还从全国登记处收集了有关社会人口统计学状况，劳动力市场从属关系和合并症的数据。使用伪值方法将关联作为事件发生的时间进行分析。丢失的数据使用多种插补处理。结果总共802名符合条件的患者纳入了基于登记册的分析，其中411名患者（51％）对问卷进行了回应。根据登记册数据得出的结果表明，如果患者独自生活，教育程度低或家庭收入低，获得临时或永久性社会福利或患有精神病诊断，则不太可能接受基于PRO的随访。根据调查表数据得出的结果表明，如果患者报告的健康素养，自我效能感，患者活动能力，幸福感或总体健康水平较低，则不太可能接受基于PRO的随访。