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Type of clinical outcomes used by healthcare professionals to evaluate health-related quality of life domains to inform clinical decision making for chronic pain management.
Quality of Life Research ( IF 3.5 ) Pub Date : 2019-05-30 , DOI: 10.1007/s11136-019-02215-8
Diana Zidarov 1, 2 , Regina Visca 3 , Sara Ahmed 1, 2, 3
Affiliation  

PURPOSE To evaluate the health-related quality of life (HRQoL) domains currently assessed by healthcare professionals (HCPs) in secondary and tertiary hospital-based chronic pain clinics and the type of clinical outcomes (CO) used. METHODS Electronic cross-sectional survey (May to September 2016) based on domains of HRQoL included in the Patient-Reported Outcomes Measurement Information System (PROMIS) framework. RESULTS HCPs response rate was 53% (36/68). Their mean clinical experience was 14.8 years (± 11.1), and their mean experience treating chronic pain (CP) population was 10.2 years (± 7.8). All PROMIS-HRQoL domains were assessed by HCPs (range 28-97%, mean = 64%) with a preponderance of domains related to physical health (mean = 82%). Standardized outcome measures (OMs) including performance outcomes and patient-reported outcomes (PROs) were not frequently used (mean 0.5% and 3%, respectively) for assessing HRQoL domains compared to clinician reported outcomes (patient interviews, patient observation) (mean = 87%). Forty different OMs for assessing HRQoL domains were reported, and 30% of OMs were used by more than one HCP. HCPs expressed a need (range from 2.3 to 26.3%) for using more than one type of CO for assessing most domains of HRQoL (range from 2.3 to 26.3%) with a preference of using more PROs combined with CROs. CONCLUSIONS All domains of HRQoL are assessed by at least some HCPs for chronic pain management. Standardized OMs including performance-based measures and PROs were not frequently used, and there was no consistent use of the same OM across HCPs. A consensus among different stakeholders in chronic pain management on core domains of HRQoL and their associated OMs to promote a more evidence-based assessment is needed.

中文翻译:

医疗保健专业人员用来评估与健康相关的生活质量域的信息,以指导慢性疼痛管理的临床决策。

目的评估目前由二级和三级医院的慢性疼痛诊所中的医疗专业人员(HCP)评估的健康相关生活质量(HRQoL)域以及所使用的临床结果(CO)的类型。方法电子横断面调查(2016年5月至2016年9月)基于HRQoL的域,该域包含在患者报告的结果测量信息系统(PROMIS)框架中。结果HCP的应答率为53%(36/68)。他们的平均临床经验为14.8年(±11.1),其治疗慢性疼痛(CP)人群的平均经验为10.2年(±7.8)。所有PROMIS-HRQoL域均由HCP评估(范围28-97%,平均值= 64%),其中大部分与身体健康相关(平均= 82%)。与临床医生报告的结果(患者访谈,患者观察)相比,包括绩效结果和患者报告结果(PRO)在内的标准化结果度量(OM)很少(分别为0.5%和3%)用于评估HRQoL域(平均值= 87%)。报告了40个不同的OM用于评估HRQoL域,并且30%的OM被多个HCP使用。HCP表示需要使用一种以上类型的CO来评估HRQoL的大多数域(范围从2.3至26.3%)(优先使用更多的PRO和CRO)。结论至少一些HCP对HRQoL的所有域进行了慢性疼痛管理评估。包括基于绩效的度量标准和PRO在内的标准化OM并不经常使用,并且在HCP中也没有一致地使用同一OM。
更新日期:2019-05-28
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