Background and Purpose The aim of this study was to gain insights and understanding into the lived experience of relapsing remitting multiple sclerosis (RRMS) in order to better inform patient-centerd nursing and healthcare. Methods This qualitative study used life history methodology, a form of focused ethnography, to explore the life history of 13 study participants living with RRMS. Semi-structured interviews were transcribed and analysed using thematic analysis. Findings A total of eight key themes emerged, explaining the journey of living with RRMS. Commencing with “Piecing Together the Puzzle” of symptoms at the beginning of the RRMS journey, followed by “(Re)defining ME now that I have RRMS,” “Battling the Demons,” the experiences of “Surplus Suffering,” negotiating “High Invisibility,” gaining control by “Taming the Beast,” learning “The DMT Dance,” and ultimately “Holding Hands with Hope,” expressing hope and practising purposeful positivity. Implications for Practice The eight key themes of living with RRMS were reflective of the ebbs and flows of life. By gaining these insights into the world of people living with RRMS, it is anticipated that clinical nursing care and quality of life for people living with this chronic neurological disease may be improved.

中文翻译：

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“驯服野兽”：使用生活史方法探索复发缓解多发性硬化症的经验。

背景与目的本研究的目的是获得对复发性缓解型多发性硬化症（RRMS）的实际经验的见识和理解，以便更好地为以患者为中心的护理和保健提供信息。方法这项定性研究使用生活史方法学（一种重点人种志形式）来探索13名RRMS患者的生活史。使用主题分析法记录和分析半结构式访谈。结果总共出现了八个关键主题，解释了使用RRMS的过程。在RRMS旅程开始时，先从症状的“拼凑而成”开始，然后是“现在（我）拥有RRMS，重新定义我”，“打击恶魔”，“过剩痛苦”的经历，协商“高级”的经历。隐身”，通过“驯服野兽”获得控制权，”，学习“ DMT舞蹈”，最终学习“充满希望的握手”，表达希望并实践有目的的积极态度。实践的意义RRMS的八个主要主题反映了生活的潮起潮落。通过获得有关RRMS患者世界的这些见解，可以预期可以改善这种慢性神经系统疾病患者的临床护理和生活质量。