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The ethics of research biobanking: a critical review of the literature.
Biotechnology and Genetic Engineering Reviews ( IF 3.2 ) Pub Date : 2008-01-01 , DOI: 10.5661/bger-25-429
Klaus Hoeyer 1
Affiliation  

Human tissue has been stored and used for research on a regular basis for more than 80 years. During the 1990s, collections of human tissue suddenly became framed as ethical problems in a process reflecting developments in genetic research intertwined with developments in patient rights and steps towards increased commercialization of research. This review describes the process of framing tissue storage as an ethical problem and the solutions proposed in the process. It gives an overview of the academic debate and relates this debate to empirical studies of donor attitudes and interests. It points to the clear discrepancy between the concerns of donors, legislators and ethicists. The academic debate and legislatory action tend to focus on informed consent, and most of the concerns that donors have remain unattended to.

中文翻译:

研究生物库的伦理:对文献的评论。

人体组织已被定期存储并用于研究超过80年。在1990年代,人体组织的收集突然被视为伦理问题,反映出遗传研究的发展与患者权利的发展以及研究的商业化步伐交织在一起。这篇评论描述了将组织存储构架为一个伦理问题的过程以及该过程中提出的解决方案。它概述了学术辩论,并将该辩论与捐助者态度和利益的实证研究联系起来。它指出了捐助者,立法者和伦理学家之间存在明显的差异。学术辩论和立法行动往往侧重于知情同意,而捐助者的大多数担忧仍未得到关注。
更新日期:2019-11-01
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