This case study discusses the design, development, and formative evaluation of Epilepsy Journey, an individually tailored, web-based intervention designed to address the unique executive functioning (EF) needs of adolescents with epilepsy. This intervention was designed through a three-phase iterative, patient-centered participatory action research process. First, a front-end analysis was completed to identify the unique needs of adolescents with epilepsy and initial design ideas via focus groups. Second, a preliminary design of the intervention was developed from focus group results. Finally, we iteratively incorporated revisions and refinements based on patient-centered feedback collected during usability sessions. Findings based on usage analytics, user reports, and coded qualitative themes from usability sessions suggest that our iterative, patient-centered approach to design, development, and evaluation resulted in a visually appealing interactive and brief intervention that is both engaging and individually tailored to the needs of adolescents with epilepsy.

中文翻译：

---

癫痫旅程的形成性设计：基于网络的癫痫青少年的执行功能干预。

本案例研究讨论了癫痫历程的设计，开发和形成性评估，这是一种个性化的基于网络的干预措施，旨在解决癫痫青少年的独特执行功能（EF）需求。该干预措施是通过以患者为中心的三阶段迭代，以患者为中心的参与式行动研究过程而设计的。首先，完成了一项前端分析，以通过焦点小组确定患有癫痫症和初始设计思路的青少年的独特需求。其次，根据焦点小组的结果制定了干预措施的初步设计。最后，我们基于可用性会议期间收集的以患者为中心的反馈，反复地结合了修订和完善。根据使用情况分析，用户报告以及可用性会议中编码的定性主题得出的结论表明，我们的迭代，