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An Environmental Scan of Parent-focused Transition Practices between Neonatal Follow-up and Children's Rehabilitation Services.
Developmental Neurorehabilitation ( IF 1.3 ) Pub Date : 2019-08-20 , DOI: 10.1080/17518423.2019.1657199
Marilyn Ballantyne 1, 2 , Taryn Orava 1 , Stephanie Bernardo 3 , Amy C McPherson 2, 4 , Paige Church 5 , Darcy Fehlings 1, 2 , Eyal Cohen 2, 6
Affiliation  

Purpose: Identify parent-focused transition practices for parents of children born preterm/acutely ill when transitioning from Neonatal Follow-Up Programs (NFUP) to Children's Treatment Centers or Networks (CTCN).Methods: NFUP and CTCN health-care providers participated in an online survey and qualitative interviews. Quantitative data were analyzed using descriptive statistics and qualitative data underwent conventional content analysis.Results: 60 participants (17 sites) from diverse health disciplines completed the survey, and 14 (from 11 of 17 sites) participated in a follow-up interview. Enablers to transition included knowledgeable practitioners, shared services, and family engagement; although not present across all sites. Barriers commonly reported were a lack of time, understanding of roles, and parent engagement.Conclusion: Research study findings highlight the need to improve and bridge NFUP to CTCN parent-focused transition practices. Recommendations for next actions steps include improved cross-sector communication, bridging sectors through enhanced service provision, and moving from information provision to family engagement.

中文翻译:

对新生儿随访和儿童康复服务之间以父母为中心的过渡实践的环境扫描。

目的:确定从新生儿跟进计划(NFUP)过渡到儿童治疗中心或网络(CTCN)时早产/急性疾病儿童父母的以父母为中心的过渡方法。方法:NFUP和CTCN卫生保健提供者参加了在线调查和定性访谈。使用描述性统计数据对定量数据进行分析,并对定性数据进行常规的内容分析。结果:来自不同卫生学科的60名参与者(17个站点)完成了调查,而17个站点中的11个站点中有14个参与者进行了后续访谈。过渡的推动者包括知识渊博的从业人员,共享服务和家庭参与;尽管并非在所有站点上都存在。通常报告的障碍是时间不足,对角色的理解以及父母的参与。研究结果表明,有必要改进NFUP并将其与以CTCN家长为中心的过渡实践联系起来。关于下一步行动步骤的建议包括改善跨部门沟通,通过增强服务提供来桥接部门,以及从信息提供转向家庭参与。
更新日期:2019-11-01
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