Family caregivers face ongoing, formidable stress and burden. Caregivers need sustainable support to maintain resilience. We aim to identify challenges, possible solutions that are resources for resilience, and expected consequences from the perspective of 39 family caregivers of hospice patients with dementia. The resilience framework was used to guide the coding and synthesis of the qualitative data. Identified challenges included difficulties in communication, providing care and decision-making, lack of knowledge, emotional challenges, concern about care facility selection, death with dignity, and lack of public awareness. Resilience resources for caregiving challenges were identified at the individual, community, and societal levels. Anticipated benefits of using these resources included the ability to provide better care and have a better quality of life for both patients and caregivers. The findings of this study can guide the design and implementation of supportive interventions designed for family caregivers of hospice patients with dementia to bolster available resilience resources.

中文翻译：

---

为临终关怀痴呆症患者的家庭护理人员调整适应力框架。

家庭照顾者面临持续不断的巨大压力和负担。护理人员需要可持续的支持来保持弹性。我们的目标是从39名临终关怀痴呆症患者的家庭护理人员的角度确定挑战，可能的解决方案（这些资源可作为抵御疾病的能力）以及预期的后果。弹性框架用于指导定性数据的编码和合成。已查明的挑战包括沟通困难，提供护理和决策的机会，知识不足，情感挑战，对护理设施选择的关注，有尊严的死亡以及缺乏公众意识。在个人，社区和社会各级确定了应对护理挑战的应变能力资源。使用这些资源的预期好处包括能够为患者和护理人员提供更好的护理和更好的生活质量。这项研究的结果可指导针对痴呆临终关怀患者的家庭护理人员的支持性干预措施的设计和实施，以增强可用的恢复力资源。