Plain English summary Tailoring and testing a peer support decision making strategy with First Nations, Inuit and Métis people making decisions about their cancer care: A study protocol.First Nations, Inuit and Métis (FNIM) people face higher risks for cancer compared to non-FNIM populations. They also face cultural barriers to health service use. Within non-FNIM populations an approach to health decision making, called shared decision making (SDM), has been found to improve the participation of people in their healthcare. Peer support with SDM further improves these benefits. The purpose of this study is to tailor and test a peer support SDM strategy with community support workers to increase FNIM people's participation in their cancer care.This project has two phases that will be designed and conducted with a Steering Committee that includes members of the FNIM and cancer care communities. First, a peer support SDM strategy will be tailored to meet the needs of cancer system users who are receiving care in urban settings, and training in the SDM strategy developed for community support workers. Three communities will be supported for participation in the study and community support workers who are peers from each community will be trained to use the SDM strategy.Next, each community support worker will work with a community member who has a diagnosis of cancer or who has supported a family member with cancer. Each community support worker and community member pair will use the SDM strategy. The participation and experience of the community support worker and community member will be evaluated.The research will be used to develop strategies to support people who are making decisions about their health. Abstract Tailoring and field-testing the use of a knowledge translation peer support shared decision making strategy with First Nations, Inuit and Métis people making decisions about their cancer care: A study protocol Background First Nations, Inuit and Métis ("FNIM") people face increased cancer risks in relation to general populations and experience barriers to health service use. Shared decision making (SDM) has been found to improve peoples' participation and outcomes in healthcare and peer support with SDM further improves these benefits. The purpose of this study is to tailor and then field test, by and with FNIM communities, a peer support SDM strategy for use in cancer care. Methods This project has 2 theory-driven phases and 5 stages (a-e). A core research team that includes members of the Aboriginal Cancer Control Unit of Cancer Care Ontario communities and academic researchers, will work with a Steering Committee. In phase 1, (stage a) a peer support SDM strategy will be tailored to meet the needs of cancer system users who are receiving care in urban settings and (stage b), training developed that will i) introduce participant communities to SDM, and ii) train community support workers (CSWs) within these communities. Next (stage c), three communities will be approached for voluntary participation in the study. These communities will be introduced to SDM in community meetings, and if in agreement then CSWs from each community will be recruited to participate in the study. One volunteer CSW from each community will be trained to use the peer support SDM strategy to enable phase 2 (field test of the peer support SDM strategy).During phase 2 (stage d), each CSW will be matched to a volunteer community member who has had a diagnosis of cancer or has supported a family member with cancer and is familiar with Ontario cancer systems. Each CSW-community member pair (3 to 4 pairs/community) will use the tailored peer support SDM strategy; their interaction will be audio-recorded and their participation and experience evaluated (total of 9 to 12 interviews). As well (stage e), data will be collected on health systems' factors related to the use of the peer support SDM strategy. Discussion Findings will develop peer support SDM strategies to enhance participation of FNIM people in cancer care decisions, advance knowledge translation science, and support a proposal to conduct a multi-site implementation trial.

中文翻译：

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定制和现场测试知识翻译同伴支持的使用，与原住民、因纽特人和梅蒂斯人共同制定癌症护理决策：一项研究方案。

简单英语摘要与原住民、因纽特人和梅蒂斯人一起制定和测试同伴支持决策策略，以做出有关癌症护理的决策：一项研究方案。与非原住民、因纽特人和梅蒂斯人 (FNIM) 人相比，原住民、因纽特人和梅蒂斯人 (FNIM) 面临更高的癌症风险。 FNIM 人群。他们还面临使用卫生服务的文化障碍。在非 FNIM 人群中，一种称为共享决策 (SDM) 的健康决策方法被发现可以提高人们对医疗保健的参与度。SDM 的同行支持进一步提高了这些优势。本研究的目的是与社区支持工作者一起制定和测试同伴支持 SDM 策略，以提高 FNIM 人员对癌症护理的参与度。该项目分为两个阶段，将由包括 FNIM 成员在内的指导委员会设计和实施和癌症护理社区。首先，将量身定制同伴支持 SDM 战略，以满足在城市环境中接受护理的癌症系统用户的需求，并为社区支持人员制定 SDM 战略培训。将支持三个社区参与这项研究，并且来自每个社区的社区支持工作者将接受使用 SDM 策略的培训。接下来，每个社区支持工作者将与一名被诊断患有癌症或患有癌症的社区成员合作。支持一位患有癌症的家庭成员。每对社区支持工作者和社区成员都将使用 SDM 策略。社区支持工作者和社区成员的参与和经验将受到评估。该研究将用于制定策略，以支持正在做出健康决策的人们。摘要 与原住民、因纽特人和梅蒂斯人一起制定和现场测试知识翻译同行支持共享决策策略，以做出有关癌症护理的决策：一项研究方案 背景 原住民、因纽特人和梅蒂斯人 (“FNIM”) 面临的问题一般人群的癌症风险增加，并且在使用卫生服务方面遇到障碍。研究发现，共享决策 (SDM) 可以改善人们在医疗保健方面的参与和结果，而 SDM 的同伴支持可以进一步改善这些益处。本研究的目的是由 FNIM 社区制定并与 FNIM 社区一起进行现场测试，用于癌症护理的同伴支持 SDM 策略。方法 该项目有 2 个理论驱动阶段和 5 个阶段 (ae)。一个核心研究团队将与指导委员会合作，该团队包括安大略省癌症护理社区原住民癌症控制部门的成员和学术研究人员。在第 1 阶段，（阶段 a）将量身定制同伴支持 SDM 策略，以满足在城市环境中接受护理的癌症系统用户的需求，以及（阶段 b）制定培训，以 i) 向参与社区介绍 SDM，ii) 在这些社区内培训社区支持人员 (CSW)。接下来（c 阶段），将联系三个社区自愿参与研究。这些社区将在社区会议上被介绍给 SDM，如果达成一致，那么来自每个社区的 CSW 将被招募来参与研究。每个社区的一名志愿者 CSW 将接受培训，使用同伴支持 SDM 策略来启用第 2 阶段（同伴支持 SDM 策略的现场测试）。在第 2 阶段（阶段 d），每个 CSW 将与一名志愿者社区成员相匹配，该成员被诊断出癌症或支持患有癌症的家庭成员，并且熟悉安大略省癌症系统。每个 CSW 社区成员对（每个社区 3 至 4 对）将使用量身定制的同伴支持 SDM 策略；他们的互动将被录音，并评估他们的参与和经验（总共 9 至 12 次访谈）。此外（阶段 e），还将收集与使用同行支持 SDM 策略相关的卫生系统因素的数据。讨论结果将制定同行支持 SDM 策略，以加强 FNIM 人员对癌症护理决策的参与，推进知识转化科学，并支持进行多站点实施试验的提案。