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The Information Gap for Children and Young People with Acquired Brain Injury.
Developmental Neurorehabilitation ( IF 1.3 ) Pub Date : 2019-02-07 , DOI: 10.1080/17518423.2018.1564394
Carolyn Dunford 1 , Clair Cobbold 2 , Ian Ray 3 , Lorna Wales 2
Affiliation  

STATEMENT OF PURPOSE This study explored the information requirements of children/youth with an acquired brain injury. METHODS An online survey (n = 16), focus group (n = 5) and in-depth semi-structured interviews (n = 3) elicited the views of 24 children/youth with ABI. A priori thematic coding was used to analyze the data. RESULTS Five themes emerged: stage and age, school, friendship and peers, delivery methods and information content. The desired information changes over time depending on age and time since the injury. Children/youth want their friends and teachers to access information on brain injury. Children/youth want information delivered through a range of channels, including videos (featuring genuine case studies), apps and board games. Children/youth wanted information specific to their injury, information on brain injury more generally, and practical strategies for overcoming problems. CONCLUSIONS Children/youth with ABI were able to express views about their information needs, which change over time and include a range of channels.

中文翻译:

针对获得性脑损伤的儿童和年轻人的信息鸿沟。

目的陈述这项研​​究探讨了获得性脑损伤的儿童/青少年的信息需求。方法通过在线调查(n = 16),焦点小组(n = 5)和深入的半结构化访谈(n = 3)得出了24名ABI的儿童/青年的观点。先验主题编码用于分析数据。结果出现了五个主题:年龄和年龄,学校,友谊和同龄人,传递方法和信息内容。自受伤以来,所需信息会随年龄和时间的变化而变化。儿童/青年希望他们的朋友和老师访问有关脑损伤的信息。儿童/青年希望通过各种渠道提供信息,包括视频(以真实案例研究为特色),应用程序和棋盘游戏。儿童/青年想要有关他们受伤的信息,有关脑损伤的信息,以及解决问题的实用策略。结论患有ABI的儿童/青年能够表达他们对信息需求的看法,这些看法随着时间的推移而变化,并包括一系列渠道。
更新日期:2019-11-01
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