PLAIN ENGLISH SUMMARY The UK's National Institute for Health Research (NIHR) Health Protection Research Unit in Emergency Preparedness and Response was asked to undertake research on how to reduce the impact of complex national/international emergencies on public health. How to focus the research and decide on priority topics was challenging, given the nature of complex events. Using a type of structured brain-storming, the researchers identified the ongoing UK, European and international migration crisis as both complex and worthy of deeper research. To further focus the research, two representatives of forced migrant communities were invited to join the project team as patient and public (PPI) representatives. They attended regular project meetings, insightfully contributed to and advised on practical aspects of potential research areas. The representatives identified cultural obstacles and community needs and helped choose the final research study design, which was to interview forced migrants about their strategies to build emotional resilience and prevent mental illness. The representatives also helped design recruitment documents, and undertake recruitment and interviewer training. ABSTRACT BACKGROUND Many events with wide-ranging negative health impacts are notable for complexity: lack of predictability, non-linear feedback mechanisms and unexpected consequences. A multi-disciplinary research team was tasked with reducing the public health impacts from complex events, but without a pre-specified topic area or research design. This report describes using patient and public involvement within an adaptable but structured development process to set research objectives and aspects of implementation. METHODS An agile adaptive development approach, sometimes described as swarm, was used to identify possible research areas. Swarm is meant to quickly identify strengths and weaknesses of any candidate project, to accelerate early failure before resources are invested. When aspects of the European migration crisis were identified as a potential priority topic area, two representatives of forced migrant communities were recruited to explore possible research ideas. These representatives helped set the specific research objectives and advised on aspects of implementation, still within the swarm framework for project development. RESULTS Over ten months, many research ideas were considered by the collaborative working group in a series of six group meetings, supplemented by email contact in between. Up to four possible research ideas were scrutinised at any one meeting, with a focus on identifying practical or desirable aspects of each proposed project. Interest settled on a study to solicit original data about successful strategies that forced migrants use to adapt to life in the UK, with an emphasis on successfully promoting resilience and minimizing emotional distress. "Success in resettlement" was identified to be a more novel theme than "barriers to adaption" research. A success approach encourages participation when individuals may find discussion of mental illness stigmatising. The patient representatives helped with design of patient-facing and interview training materials, interviewer training (mock interviews), and aspects of the recruitment. CONCLUSION Using patient and public involvement (PPI) within an early failure development approach that itself arises from theory on complex adaptive systems, we successfully implemented a dynamic development process to determine research topic and study design. The PPI representatives were closely involved in setting research objectives and aspects of implementation.

中文翻译：

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强迫移民参与制定议程和设计研究以减少复杂紧急情况的影响：将 Swarm 与患者和公众参与相结合。

简明英文摘要 英国国家卫生研究所 (NIHR) 的应急准备和响应健康保护研究部门被要求开展有关如何减少复杂的国家/国际突发事件对公共卫生的影响的研究。鉴于复杂事件的性质，如何集中研究并确定优先主题具有挑战性。使用一种结构化的头脑风暴，研究人员确定正在进行的英国、欧洲和国际移民危机既复杂又值得深入研究。为了进一步集中研究，邀请了两名被迫移民社区的代表作为患者和公众 (PPI) 代表加入项目团队。他们参加了定期的项目会议，对潜在研究领域的实际方面做出了深刻的贡献并提出了建议。代表们确定了文化障碍和社区需求，并帮助选择了最终的研究设计，即采访被迫移民关于他们建立情绪复原力和预防精神疾病的策略。代表们还帮助设计了招聘文件，并进行了招聘和面试官培训。抽象背景 许多具有广泛负面健康影响的事件因复杂性而引人注目：缺乏可预测性、非线性反馈机制和意想不到的后果。一个多学科研究团队的任务是减少复杂事件对公共卫生的影响，但没有预先指定的主题领域或研究设计。本报告描述了在适应性强但结构化的开发过程中使用患者和公众参与来设定研究目标和实施方面。方法 一种敏捷的自适应开发方法，有时被描述为群体，用于确定可能的研究领域。Swarm 旨在快速识别任何候选项目的优势和劣势，在资源投入之前加速早期失败。当欧洲移民危机的各个方面被确定为潜在的优先主题领域时，招募了两名被迫移民社区的代表来探索可能的研究思路。这些代表帮助制定了具体的研究目标，并就实施的各个方面提出了建议，仍然在项目开发的群体框架内。结果超过十个月，协作工作组在一系列六次小组会议中考虑了许多研究想法，并在其间通过电子邮件联系进行了补充。在任何一次会议上都审查了多达四个可能的研究想法，重点是确定每个提议项目的实际或可取的方面。兴趣集中在一项研究上，以征集有关迫使移民用来适应英国生活的成功策略的原始数据，重点是成功地提高复原力和最大程度地减少情绪困扰。“移民成功”被确定为比“适应障碍”研究更新颖的主题。当个人可能会发现讨论精神疾病被污名化时，成功的方法会鼓励参与。患者代表帮助设计面向患者和面谈培训材料、面谈员培训（模拟面谈）以及招聘的各个方面。结论 在早期失败开发方法中使用患者和公众参与 (PPI)，该方法本身源于复杂自适应系统的理论，我们成功地实施了动态开发过程来确定研究主题和研究设计。PPI 代表密切参与制定研究目标和实施方面。我们成功地实施了一个动态的开发过程来确定研究主题和研究设计。PPI 代表密切参与制定研究目标和实施方面。我们成功地实施了一个动态的开发过程来确定研究主题和研究设计。PPI 代表密切参与制定研究目标和实施方面。