BACKGROUND An increasingly older population, improved diagnostics and treatment increase the number of older cancer survivors, thus more than 60% of those affected by cancer are over the age of 65. Symptom relief and the prevention of functional impairment are important tasks for home care nursing, considering that patients can live a long time with their cancer disease and related side effects. The aim of this study was to investigate the extent to which cancer patients over the age of 65 reported access to information and counselling from home care nursing services, including those offered by the cancer coordinator. METHODS A cross-sectional survey was used. The survey consisted of 174 cancer patients from two regions in Norway living at home (101 women; 66-92 years). The questionnaire contained questions of various sequences including information and advices given and data on access to and use of home health care services. The questions focused on the extent to which home health care services provided the following: 1) information about the disease and treatment, 2) information about consequences and complications of the cancer disease, 3) nutritional advice and 4) advice on physical activity. Demographic, clinical and organizational variables were used. SPSS program version 22 was employed to perform descriptive and inferential statistics including correlation and logistic regression analysis. For ethical reasons, patients who were dying, delirious or with presence of cognitive impairment (any kind of dementia) were excluded. RESULTS The results showed that a majority (67-77%) of the respondents reported low levels of information and counselling offered. Low levels represents in this study medium, small and very small degree (Likert scale). Women, those above 85 years of age and patients with a gynecological or hematological cancer diagnosis experienced less access to information and counselling. Respondents facing availability of a cancer coordinator reported significantly higher access to information about the disease and treatment (p = 0.03), nutritional advice (p = 0.04) and advice on physical activity (p = 0.04) compared to those who only had contact with a home health care nurse or home health care assistant. CONCLUSIONS The results indicated that the availability of a cancer coordinator facilitated personalized information and counselling for older cancer patients.

中文翻译：

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获得信息和咨询的机会-老年癌症患者的自我报告：一项横断面调查。

背景技术人口的增长，诊断和治疗的改善增加了癌症幸存者的数量，因此，受癌症影响的患者中有60％以上是65岁以上。缓解症状和预防功能障碍是家庭护理的重要任务，考虑到患者可以长期患有癌症和相关的副作用。这项研究的目的是调查65岁以上癌症患者报告从家庭护理护理服务（包括癌症协调员提供的信息）获得信息和咨询的程度。方法采用横断面调查。该调查包括来自挪威两个地区的174位癌症患者，他们居住在家里（101位女性； 66-92岁）。问卷包含各种顺序的问题，包括提供的信息和建议以及有关获得和使用家庭保健服务的数据。问题集中在家庭保健服务提供以下内容的程度上：1）有关疾病和治疗的信息，2）有关癌症疾病的后果和并发症的信息，3）营养建议和4）体育锻炼的建议。使用人口统计学，临床和组织变量。使用SPSS程序版本22进行描述性和推断性统计，包括相关性和逻辑回归分析。出于伦理原因，将垂死，精神错乱或存在认知障碍（任何类型的痴呆）的患者排除在外。结果结果表明，大多数（67-77％）的受访者表示提供的信息和咨询服务水平较低。在本研究中，低水平表示中等程度，小的和非常小的程度（Likert量表）。妇女，年龄在85岁以上的妇女以及患有妇科或血液学癌症的患者获得信息和咨询的机会较少。面对癌症协调员的受访者表示，与仅接触过癌症的人相比，获得有关疾病和治疗信息（p = 0.03），营养建议（p = 0.04）和身体活动建议（p = 0.04）的机会要高得多。家庭保健护士或家庭保健助理。