ArgumentThe deficit model of science communication assumes that the creation and dissemination of knowledge is limited to researchers with formal credentials. Recent challenges to this model have emerged among “e-patients” who develop extensive online activist communities, demand access to their own health data, conduct crowd-sourced experiments, and “hack” health problems that traditional medical experts have failed to solve. This article explores the aesthetics of medical media that enact the transition from a deficit model to a patient-driven model of visual representation and health communication. I present a framework for understanding the role of film and video in patient movements by analyzing the historical transition from researchers filming patients as nameless, voiceless human research subjects to patients recording their own health narratives through activist cinematography. By comparing several approaches to patient-centered video, I argue that imperfect production aesthetics play a critically important role in establishing the credibility of health communications.

中文翻译：

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科学医学共享经济中专业美学的转变

论据科学传播的赤字模型假设知识的创造和传播仅限于具有正式证书的研究人员。最近对这种模式的挑战出现在“电子患者”中，他们开发了广泛的在线活动社区，要求访问自己的健康数据，进行众包实验，以及“破解”传统医学专家未能解决的健康问题。本文探讨了医疗媒体的美学，它实现了从缺陷模型到患者驱动的视觉表现和健康交流模型的转变。我通过分析研究人员拍摄无名患者的历史转变，提出了一个理解电影和视频在患者运动中的作用的框架，无声的人类研究对象通过激进电影摄影记录自己的健康叙述的患者。通过比较以患者为中心的视频的几种方法，我认为不完美的制作美学在建立健康传播的可信度方面起着至关重要的作用。