Sharing deidentified patient-level research data presents immense opportunities to all stakeholders involved in cardiology research and practice. Sharing data encourages the use of existing data for knowledge generation to improve practice, while also allowing for validation of disseminated research. In this review, we discuss key initiatives and platforms that have helped to accelerate progress toward greater sharing of data. These efforts are being prompted by government, universities, philanthropic sponsors of research, major industry players, and collaborations among some of these entities. As data sharing becomes a more common expectation, policy changes will be required to encourage and assist data generators with the process of sharing the data they create. Patients also will need access to their own data and to be empowered to share those data with researchers. Although medicine still lags behind other fields in achieving data sharing's full potential, cardiology research has the potential to lead the way.

中文翻译：

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数据共享和心脏病学

共享未识别的患者级研究数据为参与心脏病学研究和实践的所有利益相关者提供了巨大的机会。共享数据鼓励使用现有数据生成知识以改进实践，同时也允许对传播的研究进行验证。在本次审查中，我们讨论了有助于加速实现更大程度数据共享的关键举措和平台。这些努力是由政府、大学、研究的慈善赞助商、主要行业参与者以及其中一些实体之间的合作推动的。随着数据共享成为更普遍的期望，将需要改变政策以鼓励和协助数据生成者共享他们创建的数据的过程。患者还需要访问自己的数据，并有权与研究人员共享这些数据。尽管医学在实现数据共享的全部潜力方面仍落后于其他领域，但心脏病学研究有潜力引领潮流。