Patients are increasingly being encouraged and supported to access and control their own medical and genomic data. We argue that well-established and transparent raw genomic data retention and returning policies are imperative to enable patients to practice their rights to access and control raw data.

中文翻译：

---

原始基因组数据：存储，访问和共享

越来越多地鼓励和支持患者访问和控制他们自己的医学和基因组数据。我们认为，建立良好且透明的原始基因组数据保留和返还政策对于使患者能够行使其访问和控制原始数据的权利至关重要。